Forum for parents of down syndrome. 42 Great Down Syndrome Resources You Should Know About

For New Parents

Forum for parents of down syndrome

These areas seem to lag only slightly behind. Counselors and physicians can probably support you and help you think through this, if in fact it is a possibility, which is also a pertinent fact to consider. Doctors are quick to talk numbers, and they never really give you a good sense of how close to none your risk really is. Click here to see a related article about Dementia: Much recent attention has been focussed on the association between Down's syndrome and Alzheimer's disease. I try to keep that in mind with Henry as much as I can. The doctor's role is to seek the underlying cause of the problem through a full assessment rather than just to suppress the symptoms.

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Parents of Children with Down Syndrome? Or Echogenic Foci prenatal diagnosis?

Forum for parents of down syndrome

Look for the blessing instead of the curse. Discussion may also include disorders of the endocrine system, hypoglycemia, growth hormones and steriods. Second find your tribe A group of people who will go through this with you and have done it before. To Join: Send a blank email to or subscribe. For this reason, invasive diagnostic testing previously was generally recommended only for women age 35 or older, those with a family history of genetic defects, or those who've had an abnormal result on a screening test. However, each individual is solely responsible for selecting an appropriate care provider or care seeker for themselves or their families and for complying with all applicable laws in connection with any employment relationship they establish. Usually performed after 18 weeks, this test uses a needle to retrieve a small sample of blood from the umbilical cord.

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42 Great Down Syndrome Resources You Should Know About

Forum for parents of down syndrome

One of mine was said to be tiny for dates with no explanation;oops-baby was 8 and a half pounds and fine. Constipation is more common due to hypotonic gut musculature. Comparing notes with other parents of children with Down's syndrome is helpful but it must be remembered that each child will follow their own path. Researching Down syndrome is an essential first step towards educating yourself about the disorder and its potential challenges. To Join: Send a blank email to or join. To Join: Send a blank email to or join.

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For Families and Carers

Forum for parents of down syndrome

Forewarned is forearmed, and do you really want to spend the next 20 weeks upset and worried sick over this? This only applies if the person is not competent to give informed consent and it is one of the few areas of the law where common sense has a large role to play. The majority of parents shared with us that their outlook on life is more positive because of their child with Down syndrome. Less than thirty years ago some Australian doctors used to advise their patients to place their Down's syndrome babies in institutions and tell their relations they had been stillborn. Down Syndrome On Twitter 29. Your child can do this too. One of the great obstacles to developing healthy sexual expression for people with Down's syndrome is the lack of information which other teenagers have access to through a variety of community sources.

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For New Parents

Forum for parents of down syndrome

There are, however, quite a few similarities in gestures, socialization, and playing with toys. The International Down Syndrome Coalition provides amazing resources, photos and videos on their Facebook Page. People with Down's syndrome have reduced cell-mediated immunity and so babies in particular are likely to suffer more respiratory infections. We offer soccer, basketball, bowling and trampoline in a safe, fun and positive environment. The child has a wide understanding of words, including nouns, verbs, adjectives, and some prepositions.

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Quotes for Parents of Children With Down Syndrome

Forum for parents of down syndrome

At the same time our services are firmly focused on practical advice designed to improve outcomes for children with Down syndrome at home and in the classroom. To Join: Send a blank email to or subscribe. As the names imply, triple screen tests for three markers; the quadruple screen includes one additional marker and is more accurate. Diet and exercise advice should be realistic, comprehensive and adapted for the person's living and employment situation where necessary. He is like a big kid forever in some ways and still likes being treated like a man in others. He has a girlfriend and friends and goes to dances and programs and a social life. Autism is a neurological injury whether caused by toxicity, birth injury or unknown.

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Developmental Scale for Children with Down Syndrome

Forum for parents of down syndrome

People with Down syndrome sometimes have an unstable upper spine and should be evaluated by a doctor before participating in physical activities. Feelings are beginning to be displayed more openly, such as showing displeasure when a toy is removed or throwing a toy on the floor when it will not work. This refers to home-based or centre-based treatment of a disabled child by a variety of health professionals such as occupational therapists, physiotherapists and speech therapists from a very early age. We want better, unbiased information and more support for those who choose to continue their pregnancies. Since society has begun investing in children with Down syndrome, life expectancy has doubled to about 60, and people with Down syndrome are increasingly completing high school, attending special college programs, and living independently.

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Parents of Children with Down Syndrome? Or Echogenic Foci prenatal diagnosis?

Forum for parents of down syndrome

You need people who can relate and understand your frustrations and needs. Special Olympics provides athletic opportunities to children and adults with intellectual disabilities, instilling the confidence they need to succeed in life. We did not get amnio for the same reasons you stated. Education about appropriate sexuality is essential. You may have to work with your local church, synagogue, mosque, or other place of worship to create structures and practices that allow your child to be included. I will definitely be looking to join Facebook groups as just reading messages on this thread have made me smile. There appears to be a gene-dose effect where having an extra chromosome 21 gives an individual a higher chance of developing the neuropathological changes of Alzheimer's disease, which are coded for on that chromosome.

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